These days people seem to make a big deal of telling people to "hold on" or "be strong"...but you know what...?
It's okay to not always be strong.
It's okay to break down and it's okay to cry.
Some days are just hard and we need to accept them as they are. Some days all I can do is cry out to God to come save me from this mess of a mind I carry on my shoulders. Some days my heart is in such a shamble that I wonder how I managed to get dressed in the morning never mind survive the day...but you know what...?
That's okay too.
Some days are just hard and that's okay.
Having a bad day and breaking down doesn't mean you're going to have a bad day everyday.
It simply means that you had a bad day.
Crying on a hard day doesn't make you weak, it simply makes you human.
It's okay to not always be okay and it's okay to not always be strong.
Fight when you can but relax when you need to. It's okay to be scared and overwhelmed just don't let it consume you.
Let it be okay to not be okay and okay to not always be strong. When we are so weak we feel like quitting we must allow God to continue to carry us through no matter how badly you want to give up. Gods power is made perfect when we are not enough.
“My grace is all you need. My power works best in weakness.” So now I am glad to boast about my weaknesses, so that the power of Christ can work through me.
~2 Corinthians 12:9New Living Translation (NLT)
Thursday, 26 February 2015
Sunday, 25 January 2015
Personal Update-January 2015
Over the past year and a half I have been battling severe depression (which leads to suicidal thinking)-along with psychosis (Which is mainly controlled with medication now) and severe OCD. In that time my depression has been in a downward spiral. Even with each medication we tried I've just been feeling worse and worse. Medications were making me feel hopeless. I felt as if every few months my dr would say, "Here's another medication to try. It may work but probably not so welcome to your life for the next two months while we wait to see if this works" (OK, maybe they didn't quite say it like that...) Then every few months I would report "No change" (in fact, I was feeling worse). I've been stuck in a hopeless downward spiral of depression. All I ever feel like doing is sleeping but the OCD makes me need to try and distract myself from my thoughts. No matter how hard I've tried to make myself feel happy I'm just not. Happiness feels so distant; out of reach.
Because nothing is helping my depression we are trying electroconvulsive therapy (ECT). Every Monday, Wednesday, and Friday they put me to sleep and then shock my brain into a controlled seizure. The weird thing about ECT is that no one knows exactly how/why it works. All they know is that it "resets" the chemicals in the brain.
I started ECT on Wednesday (Jan. 21st) and I'll have up to 20 treatments. There is a lot of hope that ECT will work for me. I've seen a few other people have really great results from ECT and I'm hoping to see the same for me. So far I've only had two treatments so it is too early to see a change but the treatments have gone really well-my body is responding well to the treatments.
After the ECT is finished we will still be going to Toronto to get assessed and get some treatment for the OCD.
In the Bible, Canaan was a land with giants. The Anakites may have been 7-9' tall. Many of the walls around the city were up to 30' tall! The Israelites fear was understandable but not justified because the All Powerful God had already promised them victory. Sometimes I find myself fearful of the war raging inside my heart. The battle of good & evil; joy & sadness. I focus on the negatives and doubt God will actually pull through and help me find victory.
"Where can we go? Our brothers made us lose heart. They say the people are stronger and taller than we are with walls up to the sky. We even saw Anakites there.Then I said to you 'Don't be shocked or afraid of them! The Lord your God is going ahead of you. He will fight for you just as you saw him do in Egypt and you saw how The Lord your God cared for you all along the way as you travelled through the wilderness, just as a father cares for his child. Now he has brought you to this place." Deuteronomy 1:29-33
Although the road God wants us to take is sometimes scarier and harder, God has promised to lead the way and take care of us just as He has brought us this far in our journey.
Please pray that I will trust God when he says He will win the victory in my battle. Please pray that the ECT works and for as few side effects as possible.
Labels:
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Friday, 28 November 2014
Held by Invisible Hands
Dear God,
I don't understand why you've placed me on this journey. Don't you see that it's too hard for me? Do you see me? Do you care? Where are you? Why aren't you helping me? How long will you leave me here struggling just to breathe? I'm drowning in pain; I weep all night long. My cheeks are stained with tears. How long must I wrestle with these thoughts and live with this sorrow in my heart? I've built up all these tall walls around me to keep everyone at a safe distance but I'm lonely, Lord. Heal me because I cannot go one more step. I am faint; my mind is in agony; all night long my soul is in anguish. I'm worn out from all my anxieties. How long, O Lord, how long?
Sincerely, The Hurt and Broken
Dear the Hurt and Broken,
I have heard your weeping. I keep track of all your sorrows. I have collected all your tears in my bottle. I have recorded each one in my book. There is a time to weep and a time to laugh; a time to kill and a time to heal; a time for war and a time for peace. There is time for everything, and a season for every activity under the heaven. My timing is perfect for I know what I am doing. Although this season hurts, I have a plan for your life, trust me. Do not give up this fight because I know the outcome. I have already won the Victory. Daughter, I love you so much.
Sincerely, God
Dear God,
I'm sorry that I ever doubted you. I know that you are perfect and holy. I'm so grateful that you hear every tear that falls and answer every request. Help me to take hold of my faith and hang on no matter what the storms of tomorrow bring. Right now hope is dangled in the winds of uncertainty. I don't struggle with whether you will deliver on your promise to make something beautiful from the shattered remains of my life-I just wonder when. I thank you that I have recovered enough to believe that things will get better...somehow...someway. And maybe, just maybe, you're not finished with me yet. Please help me to survive until the next chapter of my life.
Sincerely, your Daughter
Dear Daughter,
Remember that I am holding you with invisible hands. Don't worry about the rest.
Sincerely, God
I don't understand why you've placed me on this journey. Don't you see that it's too hard for me? Do you see me? Do you care? Where are you? Why aren't you helping me? How long will you leave me here struggling just to breathe? I'm drowning in pain; I weep all night long. My cheeks are stained with tears. How long must I wrestle with these thoughts and live with this sorrow in my heart? I've built up all these tall walls around me to keep everyone at a safe distance but I'm lonely, Lord. Heal me because I cannot go one more step. I am faint; my mind is in agony; all night long my soul is in anguish. I'm worn out from all my anxieties. How long, O Lord, how long?
Sincerely, The Hurt and Broken
Dear the Hurt and Broken,
I have heard your weeping. I keep track of all your sorrows. I have collected all your tears in my bottle. I have recorded each one in my book. There is a time to weep and a time to laugh; a time to kill and a time to heal; a time for war and a time for peace. There is time for everything, and a season for every activity under the heaven. My timing is perfect for I know what I am doing. Although this season hurts, I have a plan for your life, trust me. Do not give up this fight because I know the outcome. I have already won the Victory. Daughter, I love you so much.
Sincerely, God
Dear God,
I'm sorry that I ever doubted you. I know that you are perfect and holy. I'm so grateful that you hear every tear that falls and answer every request. Help me to take hold of my faith and hang on no matter what the storms of tomorrow bring. Right now hope is dangled in the winds of uncertainty. I don't struggle with whether you will deliver on your promise to make something beautiful from the shattered remains of my life-I just wonder when. I thank you that I have recovered enough to believe that things will get better...somehow...someway. And maybe, just maybe, you're not finished with me yet. Please help me to survive until the next chapter of my life.
Sincerely, your Daughter
Dear Daughter,
Remember that I am holding you with invisible hands. Don't worry about the rest.
Sincerely, God
Labels:
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Saturday, 25 October 2014
How You Should Not Help Me
My last post was about how to help me and what to say so I thought there should also be a post about things NOT to say to someone who is struggling with a mental illness. So many people want to help me but aren't exactly sure how...so instead they chat away and tell me about what helped their "Great-Aunts-Cousins'-Sister-in-law" when they were depressed 25 years ago...I'm sorry, but what helped you or your friend may not work for me, and quite honestly, I don't really want to hear about it. Here are some examples of what NOT to say to someone struggling with an mental illness:
DON'T SAY:
Have you tried....(I get this one a lot)
Do you have any unresolved sin in your life?
There's always someone worse off than you
No one said life was fair
Don't feel sorry for yourself
Everyone gets depressed
Get over it
Just think positive
It's your own fault
Believe me, i know how it feels. I was depressed once (for several days) and I just ___ and then I was fine!
Snap out of it
You have so many things to be thankful for, how can you be depressed?
You’d feel better if you got off all those pills
What doesn’t kill us makes us stronger
Go out and have some fun
I know how you feel
All of these statements show that you don't know what your talking about. Most people don't understand....and that's really ok! I would prefer it to be awkwardly quiet than hear one of these phrases. Try inserting some of these
Hey, diabetic, you'd feel better if you came off those meds.
Hey, paraplegic, so you can't use your legs, we create our own reality.
Hey, person who has MS, I know how you feel.
You get the idea. These sound completely unreasonable, and it’s no more reasonable to say to someone struggling with mental illness
I do understand that people don’t know they are being hurtful. People are trying to help. I get it. But here’s the thing, my illness is just as real as anyone else’s. Please stop forcing me to convince you.
And a Personal Update:
I've been back in the hospital for the past 3 months. We are waiting to get an OCD assessment in Toronto to see if they can offer me the OCD treatment that I need and I'm also meeting with a research team. If they decide that they can't help me there than we will start filling out info to head to Boston's OCD program. Please pray that we can have the assessment soon so I can finally get good treatment that I desperately need!
DON'T SAY:
Have you tried....(I get this one a lot)
Do you have any unresolved sin in your life?
There's always someone worse off than you
No one said life was fair
Don't feel sorry for yourself
Everyone gets depressed
Get over it
Just think positive
It's your own fault
Believe me, i know how it feels. I was depressed once (for several days) and I just ___ and then I was fine!
Snap out of it
You have so many things to be thankful for, how can you be depressed?
You’d feel better if you got off all those pills
What doesn’t kill us makes us stronger
Go out and have some fun
I know how you feel
All of these statements show that you don't know what your talking about. Most people don't understand....and that's really ok! I would prefer it to be awkwardly quiet than hear one of these phrases. Try inserting some of these
Hey, diabetic, you'd feel better if you came off those meds.
Hey, paraplegic, so you can't use your legs, we create our own reality.
Hey, person who has MS, I know how you feel.
You get the idea. These sound completely unreasonable, and it’s no more reasonable to say to someone struggling with mental illness
I do understand that people don’t know they are being hurtful. People are trying to help. I get it. But here’s the thing, my illness is just as real as anyone else’s. Please stop forcing me to convince you.
And a Personal Update:
I've been back in the hospital for the past 3 months. We are waiting to get an OCD assessment in Toronto to see if they can offer me the OCD treatment that I need and I'm also meeting with a research team. If they decide that they can't help me there than we will start filling out info to head to Boston's OCD program. Please pray that we can have the assessment soon so I can finally get good treatment that I desperately need!
Saturday, 18 October 2014
REPOST: Dear Hurting Friend (Saturday, 22 February 2014)
To my dear hurting friend,
Are you struggling? Are you worn out and tired? Do you feel like you are about to give up? Then hold on! Be strong! Hope is coming for you! If you have made it this far than you are a fighter!
I know what it feels like to think you're drowning and believe you're not going to make it to the other side of your mountain. I know what it feels like to reach your breaking point. You say you "can't do this anymore." You feel as if life is too much for you to handle and you would rather just die so you can be with Jesus. You feel like your life is out of control. You think you've gone too far. You've even convinced yourself that God could never love you. I've been there...actually I'm still recovering from that place. I know you will struggle to believe these next words but I promise you, with all I have in me, that these are all words of truth!
It's a daily battle for me to believe the things I know to be true. Somedays I win; somedays I loose, but thank God the final battle has already been won! We have victory in Christ! One day (in God's timing) Christ will bring us to the place where he will wipe every tear from our eyes. There will be no more pain, sorrow, crying, or death. What a wonderful truth!
This trial that you're going through is not the last word! God has written the final chapter and it is about fulfillment and eternal joy for those who love him. Eternity with God will be more amazing than we could ever imagine! Hearing about how awesome heaven will be makes me feel so impatient...I long to be "home" with Jesus NOW...but that is not His plan. God's plan and God's timing are perfect. He has a purpose for you-an amazing plan that ONLY YOU could fulfill-before he calls you home.
"He who overcomes will inherit all this, and I will be his God and he will be My son[daughter]." ~Revelation 21:7
The people who overcome "stand firm to the end." Following Christ requires boldness and bravery to stand for him through these difficult trials. Yes, He is carrying us (especially when we don't "feel" him) but we must do our part to walk with Christ with all the strength we can muster up. THEN, on the days we are too weak we must cling to His promises with every last ounce of strength we can find. On our darkest days when we barely have the strength to call out his name we can merely whisper his name and He will hear us. Sooner or later life turns upside down for everyone. When life gets hard the road to recovery may not be painless. It may not be quick but God is going to use this struggle for good...trust Him.
Your friend, Summer
Friday, 17 October 2014
REPOST: Not That Different (Tuesday, 29 April 2014)
Hello, my name is summer. I am 19 years old. I have blonde hair. I have a great family. I love art and I have a mental illness.
It's hard for me to separate who I am from my illness so I'm sure it must be extremely difficult for other people to separate. Some people almost take a step back from someone who has a mental illness. Maybe it's because they "don't understand it", they think they "can't relate to it" or maybe it's because they can't separate the person who has the illness from the illness itself. I think we do this because we can't physically see mental illnesses; it's not like having a broken leg which we can clearly see and understand.
The funny thing is we can all relate to it! How many times have you imagined a really bad senario in your head about something-a test, a meeting, or a date? You pictured the worst and got in a panic about it then it actually turned out fine. How many times have you been so down that you just wanted to stay in bed all day? How many times have you gotten worried because you couldn't remember if you actually locked the door? We all go through these experiences...just some of us go through them daily. If we look at the stigmas attached to mental illness, we see that we can all relate to them. They're not so scary and weird now, are they?
But what about the people who have these experiences everyday? What about the people who can't live their lives because of them? Why can't they just stop worrying about things? Why can't they just find some motivation? Why do some people have these experiences everyday while others can just dismiss them?
It's because having these experiences to the extreme is an illness. There is a neurochemical imbalance that makes it nearly impossible for these people to prevent these experiences. These people cannot "just get over it" on their own because they have no control over them.
We are not all that different from each other.
Thursday, 16 October 2014
REPOST: I HAVE OCD...SO NOW WHAT? (Saturday, 9 November 2013)
Saturday, 9 November 2013In my last post I talked about all the distressing thoughts that OCD puts in my mind and about he type of OCD I have (harm OCD) but it can be treated! I may always struggle with some aspects of OCD and depression BUT it will be manageable. I am fighting super-hard with homework from my group so that someday I will be able to live a normal life that is not controlled by OCD.
In my last post I talked about all the distressing thoughts that OCD puts in my mind and about he type of OCD I have (harm OCD) but it can be treated! I may always struggle with some aspects of OCD and depression BUT it will be manageable. I am fighting super-hard with homework from my group so that someday I will be able to live a normal life that is not controlled by OCD.
OCD makes up all these “rules” that become mental compulsions. (If a person has contamination obsessions, they compulsively wash their hands as a reaction to the contamination thought.) In reaction to my violent obsessions I repeatedly count by 3’s up to 33 to neutralize the thoughts, distract myself, or suppress the thoughts. Also, in reaction to my thoughts I have given the colour red ‘special power.’ I avoid the colour red as often as possible-I don‘t look at it and I don’t touch or use-anything red because I am afraid that the colour will make me lose control. I also have‘superstitious compulsions.’ I am afraid that stepping on vertical lines will make me loose control and make me act on one of my thoughts. I know that these things are ridiculous! But at the same time, I just cannot bring myself to do (or not do) these silly actions. That’s Just how OCD works.
My treatment for OCD involves medication to help with the strong anxiety (& depression) and alsocognitive behavioural therapy (CBT). CBT is a way of re-training my brain and body. The compulsions are so strongly engraved in my mind that they are just automatic! Sometimes I don’t even realize I am counting!
On Tuesdays my CBT group learns about OCD and the cognitive part of therapy. The cognitive part of therapy focuses on the mind and the thought processes. On Fridays my CBT group does“exposures” which focus on challenging behaviours. When I say “exposures” I mean exposing myself to the things I am really afraid of or exposing myself to the extremely high anxiety that comes from not doing a compulsion. Now, that Is the really hard part because it‘s the exact opposite of what OCD is telling me to do! (And may I add… OCD is preeeetty convincing…)
For example, I have a fear of my thoughts and feel that the colour red will make me lose control and act on my thoughts. That is why I don’t look at red, touch red, and or wear red…and certainly not do any of these things while having terrible thoughts. So, to help get rid of that fear I need to expose myself to both red & my thoughts.
We start out with "easy" [quotations because it's not really easy at all...just the most 'do-able'] exposures-things that cause me anxiety but not so much anxiety that I wouldn‘t be able to sit with it. Then we build on it.
1. My first exposure was just to simply write down my thoughts-even though that felt like it was making these disgusting, horrible, images and thoughts even more real.
2. My second exposure was to look at something red for a while and allow my thoughts to come.
I began by looking just as long as long as I could stand the anxiety. Then, as I pushed myself, I could look at red for longer periods of time . It seems like a simple task but It caused me so much anxiety!
3. Then I wrote my thoughts in red. And eventually posted them on my wall (DEFINITELY not something I wanted hanging there-but that way I could be exposing my self even more to the thoughts).
4. For my fourth exposure I started to wear red shoes AND allow my thoughts to just come rather than pushing them away, fighting them, or distracting myself with counting.
5. THEN… I BOUGHT A RED SWEATER TO WEAR! (Around the house)
6. This week I am starting to wear red
Right Now: sometimes I can look at red things without even thinking about it!! Other times I am still able to easily challenge myself when | automatically look away. I catch myself looking away and I can say to myself,
When I started wearing red my anxiety level would stay between 80/100-100/100.
Right Now: wearing my red shoes while there is no “dangerous” situations my distress level is only 20/100 and wearing the red sweater while I’m at home with no “dangerous” situations my distress can sit at just 50/100! {Just 2 weeks ago the lowest it would go is 70/100 after sitting for several hours with 85-95/100}.
I get so easily discouraged when I think about how far I still need to go to be in control of ODC but I really need to keep it in perspective. I have been living with ODC for 12 years and I have only been in this group for 9 weeks.
So how do I recover from OCD?
My treatment for OCD involves medication to help with the strong anxiety (& depression) and alsocognitive behavioural therapy (CBT). CBT is a way of re-training my brain and body. The compulsions are so strongly engraved in my mind that they are just automatic! Sometimes I don’t even realize I am counting!
On Tuesdays my CBT group learns about OCD and the cognitive part of therapy. The cognitive part of therapy focuses on the mind and the thought processes. On Fridays my CBT group does“exposures” which focus on challenging behaviours. When I say “exposures” I mean exposing myself to the things I am really afraid of or exposing myself to the extremely high anxiety that comes from not doing a compulsion. Now, that Is the really hard part because it‘s the exact opposite of what OCD is telling me to do! (And may I add… OCD is preeeetty convincing…)
For example, I have a fear of my thoughts and feel that the colour red will make me lose control and act on my thoughts. That is why I don’t look at red, touch red, and or wear red…and certainly not do any of these things while having terrible thoughts. So, to help get rid of that fear I need to expose myself to both red & my thoughts.
We start out with "easy" [quotations because it's not really easy at all...just the most 'do-able'] exposures-things that cause me anxiety but not so much anxiety that I wouldn‘t be able to sit with it. Then we build on it.
1. My first exposure was just to simply write down my thoughts-even though that felt like it was making these disgusting, horrible, images and thoughts even more real.
2. My second exposure was to look at something red for a while and allow my thoughts to come.
{Allowing my thoughts to just be there instead of pushing them away, fighting them, or distracting myself has turned out to be the most difficult peice of all the exposures}.
I began by looking just as long as long as I could stand the anxiety. Then, as I pushed myself, I could look at red for longer periods of time . It seems like a simple task but It caused me so much anxiety!
3. Then I wrote my thoughts in red. And eventually posted them on my wall (DEFINITELY not something I wanted hanging there-but that way I could be exposing my self even more to the thoughts).
4. For my fourth exposure I started to wear red shoes AND allow my thoughts to just come rather than pushing them away, fighting them, or distracting myself with counting.
5. THEN… I BOUGHT A RED SWEATER TO WEAR! (Around the house)
6. This week I am starting to wear red
A L L. T H E. T I M E.
“Hey, It’s just a colour. I CAN look at it. Nothing bad is going to happen.”
Then I force myself to look at it.When I started wearing red my anxiety level would stay between 80/100-100/100.
Right Now: wearing my red shoes while there is no “dangerous” situations my distress level is only 20/100 and wearing the red sweater while I’m at home with no “dangerous” situations my distress can sit at just 50/100! {Just 2 weeks ago the lowest it would go is 70/100 after sitting for several hours with 85-95/100}.
I get so easily discouraged when I think about how far I still need to go to be in control of ODC but I really need to keep it in perspective. I have been living with ODC for 12 years and I have only been in this group for 9 weeks.
These 9 weeks are the only time in the 12 years that there has been improvement!*
Before this group started I would have said that ALL of the exposures I have now done were completely impossible but praise the Lord I’ve make it this far and that Never Once have I ever walked alone.
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