A friends Journey

This is a post by one of my beautiful friends. This is her story. She has chosen to write anonymously but I would love to pass on messages of encouragment to her!

Mental illness. It’s something that has been popping up in the news in the last few years-teen suicides, bed shortages, criminal trials, just to name a few. It is estimated that 20% of Canadians will experience a mental illness at some point in their life. That’s 1 in 5 people. If you don’t personally have an illness, it is likely that someone close to you is struggling, whether you know it or not. Mental illness is not like most physical illnesses. Most of the time you can’t see it. And many individuals hide their battle due to the stigma that still surrounds mental health today. 

I, like many others, became quite skilled at hiding my illness. I’ve had people tell me that I have a “perfect” life. And superficially I did-I had a handful of friends, a loving family, was doing well in school, was athletic, etc. But nobody knew what was going on under the surface. To be honest, I didn’t even know what was happening until my depression was overwhelming.

Eventually I did seek treatment. However, with every medication they gave to me, the worse I got. And no amount of cognitive therapy made any difference.  After several visits to the ER I was finally admitted to the hospital to keep me safe. I stayed for over 6 months, and spent almost 2 months on “constant observation”. That meant a nurse stayed by my side 24/7-into the bathroom, the shower, everywhere. After I’d been in hospital a few months I started ECT. Basically they put me to sleep three times a week and then applied electricity to my brain to induce a seizure. It’s about as fun as it sounds.  But after a few weeks something completely unexpected (for me) happened-I started to feel better. 

I’ve since been discharged from the hospital but it hasn’t been all sunshine and rainbows. My mental illness is still there. It’s not like an infection that goes away completely after a week of antibiotics. My antidepressants help, but they don’t remove my depression. 

Having depression sucks. Depression is not just being “sad”. It’s a feeling of such complete despair and hopelessness that suicide becomes an option-an enticing one too.  It turned my life (and my family’s/friends’) upside down. I was supposed to graduate a few weeks ago, but that didn’t happen.  I had to quit my job.  Several of my friends walked away.  And I felt like God was a million miles away. It is so hard to believe that God is still there and that He still cares when you cannot feel His presence or comfort. 

The most important thing that I have learned so far in my journey is that feelings are not facts. And to be honest, most of the time my feelings are the complete opposite of the truth. Just because you can’t feel God does not mean He is not there. Just because you feel like things are out of control does not mean that God is not carrying out his perfect plan for you. You are not useless, unimportant, unsavable, worthless, or unlovable. It is so easy to fall into believing these false truths simply because your mind tells you they are true.

Stop listening to what your brain is telling you and listen instead to what God has to say. God made you and says you are fearfully and wonderfully made (Psalm 139:14).  You aren’t just a clump of cells that somehow managed to form a human being.  Furthermore, God loves you. He loves you so much that He died for you. It doesn’t matter who you are or what you’ve done or what has happened to you-the cross was enough.  “All have sinned and fall short of the glory of God and all are justified freely by His grace through the redemption that came by Christ Jesus” (Romans 3:23-24).  If you have accepted Christ as your Saviour, God “remembers your sins no more” (Hebrews 8:12) and you can approach Him with confidence, knowing that because of Jesus you are blameless in His sight (Hebrews 4:14-16, Hebrews 10:19-23).  Finally, you have a purpose.  God has a perfect plan for your life.  A plan that will bring you closer to Him and help others that cross your path in their own spiritual journey.  “Plans to prosper you and not to harm you, plans to give you hope and a future” (Jeremiah 2911).  It’s hard to believe that sometimes.  The Bible tells us “in all things God works for the good of those who love him, who have been called according to his purpose” (Romans 8:28).  Mental illness does not feel good at all.  And it’s hard to see how something so painful for so many people can possibly be good.  But God has a plan.  He knows exactly what He’s doing and how this is going to turn out.  

You can’t let your feelings dictate your life.  I know they are there and they are intense and very convincing.  They appear to be the truth.  But they are not.  You can’t control them or make them go away, but you can choose to not let them control you.  It’s not easy (nowhere close actually) but with God it is possible.  Ask Him to help you distinguish between facts and feelings.  Write verses on cue cards and plaster them where you will see them frequently.  Read your Bible.  Have a few people you trust that can gently and lovingly tell you when you are believing your feelings and direct you to the truth. 

Not once does God ever promise that our lives will be easy.  In fact, He often tells us the opposite.  However, He does promise that He will be there beside you constantly (Deut. 31:6).  Even when you can’t feel Him.  Especially when you can’t feel Him (Psalm 34:18).  He also promises that in the end, He will win (John 16:33).  Today it may feel like you’re losing the battle.  But God will win the war.  He will destroy evil, and the pain of this sinful world will be erased.  Keep fighting- God’s got this.

How May I Help You?

We all find ourselves in situations where we feel we have no control, where we feel hopeless and alone. Maybe you're suddenly without a job, lost in a stormy dark night, your relationship or marriage is spiralling out of control, your child shows you no respect, or a sickness or death leaves you breathless and now you feel your friends distancing themselves from you because they don't know what to say or do. What would you like people to do for you if you were in one of these situations?

Most likely you would want them to do for you as I would want you to do for me. When you know I am cutting to try and stop the pain, when I'm running away from fear, when I am hearing illogical voices in my head that are constantly telling me untruths, or when you see me crouching in a corner, alone and inclosed by an inescapable sadness, please:

Take my hand and lift me up.

Show me compassion, not pity or disgust.

Tell me, retell me, assure me, that I am a woman of worth and significance.

Show me you love me with an unconditional love (Don't just tell me!).

Show me grace.

Treat me as you would a "normal" person-because I am.

Invite me to be-and accept me as-your true friend.

Give me a shoulder to cry on.

Don't abandon me.

Don't be afraid to talk with me. I can share what I am comfortable with (some days will be different than others).

Try and understand me (all I ask is that you try).

Be honest and tell me what you're thinking.

Don't try and be my psychologist-leave that to the experts.

Pray for me and with me-only God is my complete healer!

Read/message me the truths of God's word to me-I need to be reminded often.




(SAY)

I'm here for you

You're not alone in this

You are important to me

Do you want a hug? (please ask because somedays it may make things worse)

When all this is over, I'll still be here and so will you

I can't understand exactly what you are going through, but I am here to listen and support you

I'm not going to leave or abandon you

You're not crazy

I love you (only if you mean it)

It sucks that you're in so much pain

I'm not going to leave you; I'm going to take care of myself, so you don't need to worry that your pain might hurt me

What can I do to help?

This must be very hard for you

I'm here for you; I'll always be here

You are amazing, strong, and beautiful

You'll get through this

You never have to apologize for your illness or feeling this way

I'm not scared of you


These statements show that you recognize that 
I am in pain, that you don't understand, and that you will be there for me anyways.

Sometimes the best thing you can do is give me a little escape from my mind. Distract me with something fun and leave my illness aside for a while. I love to have fun but sometimes my illness gets in the way. 

 I know I have significance in God's sight. I know I am loved by him and that gives me a sense of purpose, hope, peace, and comfort that no one will ever experience unless you know Jesus Christ personally...but would it ever feel great if I could feel that, and hear that from you as well. I know it would speed my recovery and it would give you a sense that God is using you to heal me.

Thank you to my wonderful Papa, Jim Johnston, for helping me with this post! I love you!

"Conceal; Don't Feel"

I watched Frozen again the other night and both times I watched it I couldn't help but notice the similarities to my life with MI (mental illness). Could Disney be speaking of the dangers of stigmatizing MI and the power that love and acceptance has in recovery? Honestly, I don't know...but the similarities were too much for me to pass up.

Elsa, one of the main characters in the film, has a "condition" that is strongly linked to her emotions. She has explosions of ice from her hands that she cannot control. With my mental illness I have emotions and actions that, at times, I cannot control.

When Elsa is little she accidentally hurts her sister, Anna, with her powers. I know there have been times where I have hurt other people when I've done things I didn't mean to do.

Elsa and her parents become afraid that Elsa will become completely uncontrollable. They chose to shield everyone from her powers by keeping them a secret. They give her gloves to control her ice powers. My family and I are big believers in raising awareness for MI but there still has been times when the stigma has seeped into our minds. My family has never asked me to keep my illness a secret though, and they are completely supportive of this blog. Unfortunately, this is not the case for many children and teens. Many people go undiagnosed because they are afraid to have something "wrong" with them, or if they are diagnosed, it's kept low key.

"Conceal; don't feel" became Elsa's motto. I could write a whole blog about trying to "control" my illness in a society that doesn't understand it.

Elsa learns to shut everyone out of her life, even the people who desperately wanted to connect with her. I can't even count how many times I've felt so unloveable and ashamed that i locked myself away from the people who care about me. To everyone who's been trying to love me: you deserve a medal.

In the movie, Elsa has an embarrassing public outburst which causes some confusion and even some harsh criticism. One man repeatedly calls her a monster and tries to convince everyone that she is unfit to rule the kingdom.  I'm not sure if this is a negative or positive that I can't remember most of what happens during a psychotic episode. Even though I can't remember, I still feel so embarrassed for doing such silly things that I wouldn't do in my right state of mind. At one point, Satan even had me convinced that I am unforgivable and that I would never make it to heaven.

Elsa runs away to the mountains by herself where she slowly learns to accept and even find beauty in her "condition." The lyrics to the song Let it Go (It's not just some little catchy song!) are so relatable to my life with MI! The song talks about holding everything inside because of shame, then "letting go" of it all, not letting the things that make you different hold you captive.

In the end, love is what restores Elsa, Anna, and their kingdom back to order. It is that love that inspires the entire kingdom to accept & embrace Elsa's powers. I know that I wouldn't still be here if it wasn't for the power of unconditional love and support from my family, friends, and God.

Stigma keeps us silent.

Stigma keeps us away from others.

Stigma banishes us to the outskirts of society.

But love and acceptance can heal.

In order to teach the mentally ill how to love themselves; we must first learn how to love them.

It starts with the conversation. Lets talk!

(That is, if you can get Let it Go out of your head for a minute. ;)

Not That Different

Hello, my name is summer. I am 19 years old. I have blonde hair. I have a great family. I love art and I have a mental illness.

It's hard for me to separate who I am from my illness so I'm sure it must be extremely difficult for other people to separate. Some people almost take a step back from someone who has a mental illness. Maybe it's because they "don't understand it", they think they "can't relate to it" or maybe it's because they can't separate the person who has the illness from the illness itself. I think we do this because we can't physically see mental illnesses; it's not like having a broken leg which we can clearly see and understand. 

The funny thing is we can all relate to it! How many times have you imagined a really bad senario in your head about something-a test, a meeting, or a date? You pictured the worst and got in a panic about it then it actually turned out fine. How many times have you been so down that you just wanted to stay in bed all day? How many times have you gotten worried because you couldn't remember if you actually locked the door? We all go through these experiences...just some of us go through them daily. If we look at the stigmas attached to mental illness, we see that we can all relate to them. They're not so scary and weird now, are they?

But what about the people who have these experiences everyday? What about the people who can't live their lives because of them? Why can't they just stop worrying about things? Why can't they just find some motivation? Why do some people have these experiences everyday while others can just dismiss them?

It's because having these experiences to the extreme is an illness. There is a neurochemical imbalance that makes it nearly impossible for these people to prevent these experiences. These people cannot "just get over it" on their own because they have no control over them.

We are not all that different from each other.

Dear Hurting Friend

To my dear hurting friend,

Are you struggling? Are you worn out and tired? Do you feel like you are about to give up? Then hold on! Be strong! Hope is coming for you! If you have made it this far than you are a fighter!

I know what it feels like to think you're drowning and believe you're not going to make it to the other side of your mountain. I know what it feels like to reach your breaking point. You say you "can't do this anymore." You feel as if life is too much for you to handle and you would rather just die so you can be with Jesus. You feel like your life is out of control. You think you've gone too far. You've even convinced yourself that God could never love you. I've been there...actually I'm still recovering from that place. I know you will struggle to believe these next words but I promise you, with all I have in me, that these are all words of truth!

It's a daily battle for me to believe the things I know to be true. Somedays I win; somedays I loose, but thank God the final battle has already been won! We have victory in Christ! One day (in God's timing) Christ will bring us to the place where he will wipe every tear from our eyes. There will be no more pain, sorrow, crying, or death. What a wonderful truth!

This trial that you're going through is not the last word! God has written the final chapter and it is about fulfillment and eternal joy for those who love him. Eternity with God will be more amazing than we could ever imagine! Hearing about how awesome heaven will be makes me feel so impatient...I long to be "home" with Jesus NOW...but that is not His plan. God's plan and God's timing are perfect. He has a purpose for you-an amazing plan that ONLY YOU could fulfill-before he calls you home. 

"He who overcomes will inherit all this, and I will be his God and he will be My son [daughter]." ~Revelation 21:7

The people who overcome "stand firm to the end." Following Christ requires boldness and bravery to stand for him through these difficult trials. Yes, He is carrying us (especially when we don't "feel" him) but we must do our part to walk with Christ with all the strength we can muster up. THEN, on the days we are too weak we must cling to His promises with every last ounce of strength we can find. On our darkest days when we barely have the strength to call out his name we can merely whisper his name and He will hear us. Sooner or later life turns upside down for everyone. When life gets hard the road to recovery may not be painless. It may not be quick but God is going to use this struggle for good...trust Him.

Your friend, Summer 

Winter Update

~Waves ~  Therapeutic Doodling

Once again, its been a really long time since I've updated my blog. *sigh* There has been so much going on in my head that it's been difficult to put my thoughts all together so that they make sense. I've been back in the hospital for the last two months. Once again I have been letting the MI (mental Illness) stigma get in the way of me wanting to be open and honest about my story on here.  BUT-right now I'm going to set that aside because if I don't talk about this than who will..?

Our bodies can do some pretty insane things when we are under extreme amounts of stress. I think my body likes to find the most unique ways to express my stress. The most recent way is through psychosis. I've been so nervous about sharing this diagnosis because I feel as though people will automatically throw the "crazy" label on me as soon as they hear "psychosis."

The psychosis is caused by extreme stress and the psychosis causes extreme fear, anxiety, and paranoia. I've learned that I "compartmentalize" things in my mind to organize my life. It's as if I have a box in my mind for my emotions and a separate box for my thinking. When I access my "emotions box" the emotions take over and I loose my ability to think clearly. When this happens, there is a quick 'switch' in which the emotions begin to send messages to my brain saying "Go!" "Quick, get out of here!" "It's not safe!" My automatic reaction is to run away! I've even managed to escape from the locked unit of the hospital several times. I don't mean to do this and although I really want to go home I still do not want to run away. Right now I am unable to recognize this 'switch' that happens in my mind, therefore, I am unable to control my automatic reactions.

Right now my therapy consists of learning different ways to recognize what my body is telling me and recognizing when my body makes that 'switch'. If/when I do recognize that my body may be telling me that I'm stressed then I am supposed to use a "grounding technique". Grounding Techniques are anything that activate the senses such as holding cold ice, lighting & smelling a candle, petting an animal, listening to calm or very exciting music. 

This is a difficult part of recovery. I feel like so much of this stage of recovery is on me: things I need to learn and trial and error of new strategies - figuring out which ones will work for me. One of the coping tools I have been looking into is a service dog! I'm pretty excited about this. It would give me something to work towards and look forward to. Another coping strategy I have been using is little cards that my mom printed out for me that talk about our identity in Christ with verses on the back. 

You can find the cards here: 

http://www.proprofs.com/flashcards/cardshowall.php?title=who-i-am-in-christ-verses

Over the past week my new anti-psychotic medication has been working! This is a HUGE improvement! It has made such a difference! Please pray for continued healing, and wisdom for my doctors. Pray that I will stay strong in my faith and cling to my true identity in Christ and just let the devils words just pass  me by.  Please pray that the process of getting the service dog would move along quickly. Thank you for all your prayers and support! 

One Year Ago...

It’s really quite crazy how quickly things can change. One day I’m thinking about finishing up the semester, getting a job, and heading off to college…the next thing I know my world blacks out and suddenly I’m trapped in a confused reality. Then you think its just a fluke. Lots of people ‘faint’ every now and then- no big deal…until it happens again, only this time you discover it’s a seizure …and again…and again…Then you start to realize that your entire future is looking different. The seizures make life unsafe so working is no longer an option. They mess with your memory and ‘finishing up the semester’ suddenly becomes A LOT harder than school has ever been. Even simple things like walking to class on my own become major challenges because I would get lost or forget where I was going.

A year ago today I had my very first seizure. In case you have missed something or you’re just starting to read now, you can read the previous post for a short catch-up of my past year.

We have learned so much through this journey. By we I mean-my family, my friends, my teachers, my classmates, and even you: my blog-readers. This experience has not just been hard for me but also for everyone around me.

“At school, when I saw you going through these seizures I felt scared and helpless. No matter how much I told myself that you were in God's hands and that he would protect you and take care of you, it was always so hard for me to not feel scared for you and feel so helpless and like I couldn't help you! Day after day I would check up on you at school and everyday I would constantly be wondering how you were and where you were and just being worried for you. It always broke my heart to have to go searching the school for you and then finding you somewhere, sometimes bleeding, just being so confused and looking so lost! All I wanted to do was hug you and tell you that you were fine but you didn't know who I was half the time and I would just feel so helpless! That time when you had a full out seizure and I went with your mom to the hospital was probably one of the worst feelings ever. I had to watch you go to the hospital in an ambulance on a stretcher and then I had to sit in the waiting room just praying and praying.” ~Close Friend

Although this year has been tough, it’s not all been bad. There are still some good days, and there are still things to laugh and smile about.

“One of the things that stand out to me was your humour through it all. You could just be coming out of an episode and we could joke about you coming back. I could joke about you going for a walk and not knowing where you were going. Not everyone could do that.” ~Teacher
One of the big positives for me was seeing how many people have been willing to help out. Friends willing to change their schedules for me or make changes to still include me in plans, teachers helping with class work and going beyond normal teacher duties, and family making me feel extra loved and prayed for. But, the biggest positive has been meeting my best friend. If I didn’t start having seizures right then, we may have never become this close. Now, a year later, I can’t imagine my life without her!

“A really cool positive was watching you and Jasmine become very close. Every time I was there, Jasmine was there too. Then, seeing you guys hanging outside of school was very cool.” ~Teacher
Thank you Jasmine, and everyone else who has helped out in one way or another!

Usually when we go through difficult times there is learning, It’s not always clear to see…but it’s there. God doesn’t like to see his children hurting but there is always a purpose for trials and he remains faithful through them.

“Learning to trust God every moment has been my biggest challenge and greatest joy of this past year.” ~Mom
We’ve also learned so much about anxiety, OCD, depression, and mental Illness in general.

“I’ve learned about some of the ways anxiety can show in physical forms and how the mind tells the body when it senses danger.” ~Teacher
We’ve earned about the huge stigma that’s attached to MI and how far that stigma is from the truth. People who don’t have personal experience with MI don’t understand how debilitating and life altering it can be. MI’s are invisible illnesses, meaning that people can’t see the illness: they can only see the altered behaviour that the illness causes.

I’m beginning to learn how to separate who I am from my illness, which is proving to be a huge struggle. They get mixed up so easily!

“Summer is not OCD or her MI, but she is an amazing girl who loves God and wants to help others. One thing I have learned about MI is that if everyone who has told me that they, or someone they know, struggle with MI, if all those people would not be ashamed and speak openly there would be no stigma. People would accept MI as a medical condition just as cancer and diabetes. That day is coming and you are helping by reading and sharing this blog.” ~Mom

The biggest learning will be learning how to manage my life with MI in it. It may all go away someday but there’s a chance it may not. That just means learning to live with the uncertainty that OCD brings into my life and learning to stand up to my thoughts. One day OCD, anxiety, and depression will, at the least, live quietly in the back of my mind rather than having complete control over me like it does today. Until then I will make the best of the good days and just get through the bad days, taking it moment by moment.