Personal Update and How You Can Pray For Me

Personal update and how you can pray for me: 

Right now, mentally, I am doing quite well! Praise The Lord! For the most part my OCD has been manageable and the dissociations have been minimal no big "episodes" where I run away, get lost, cut, and loose contact with reality (although at times I have to work really hard to fight them off 👊 I've learned coping skills that actually help!). Although things are all well right now I will still have bad days ahead. 🙏 Please pray that I will continue to take life one moment at a time. Pray that I will be able to remember the good days when I'm having bad days and most importantly pray that I have more good days!

I've been coming off of one of my main medications 💊 [nosinan-my antipsychotic] (due to side effects). The first time I came off of it I was a wreck!! I had a major dissociative episode and then almost 3 weeks of days after days of complete dissociation. So we went back on it and added a new medication that would hopefully replace the old one. I'm SO happy to say that this switch has been quite successful ! I'm almost off the nosinan (i was on 100mg now im down to 25mg!). 🙏 Please pray for the remainder of this switch! And that this new "mood stabilizer" continues to be effective.

My Dr says that if things continue to be stable and I'm feeling good we are looking at discharge from the hospital in a couple weeks! YAY! And I have a good feeling about this discharge because my team is so great, flexible, and supportive!

On the downside my seizures have really been acting up over the past week. They had been pretty controlled for such a long time but I've had 4 big ones this week and luckily only minor injuries have occurred! 🙏 Please pray that we can figure out why I'm having this flare all of a sudden. Please pray that these episodes stop happening. Pray for safety if they are to occur and pray for Zoë  as this is great training and experience for her! 🐶

"Cast all your anxiety on Him because He cares for you." 1 Peter 5:7

In these troubled times (and all times) God isn't just some far off god who created everything who now just sits back and watches us run around like maniacs...NO God is a loving humble God who actually cares for us! He can do anything in the entire universe but He chooses to come care for us and hold us up. How incredible is that?

Father, we are in awe of your love and character. We praise you for all you've done and all you have yet to do. Help us to love you with a passion even as we're struggling.

A big thank you goes out to all of my prayer warriors out there-I have the most wonderful supporters from all over the world! God has really blessed me with the greatest friends and family, dog, Dr, rec therapist, and team ever!

Enough

Some days are just hard. 

I'm numb but everything hurts. I'm sick of hurting; sick of crying myself to sleep; sick of faking a smile; and sick of feeling worse. 

It hurts. It hurts a lot and there is so much more that I keep inside so it doesn't hurt anyone else. Then sometimes I get physically sick because I feel so "not good enough," because I "can't do anything right," and I'm too tired to go on.

The thing is, alone, I'm not enough. Alone, I can't fight this, And that's OK because, praise the Lord, we are NOT alone and with Him we are ALWAYS enough.

Someone, somewhere needs to hear this today. If that's you, I just want to take a second to tell you how enough you are. 

You are genuine. You are wise and you are compassionate. Your struggles have shaped a kind and gentle heart. You are purposeful (trust me you really are). You are loving and you are courageous. You are intuitive (your gorgeous soul always knows best). You are capable (even when you don't feel as if you are) and you are adaptable (or else you wouldn't have made it this far). 

You are extraordinary and with God on your team, 

you are so enough it blows my mind.

God wants you to know that you don't have to fight alone. 

Give in to the loving arms He's reaching out to you. 

You have the Holy Spirit here to comfort you, teach you, and help you. 

Now go take some time to go love yourself and the wonderful God who created you.

"For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. "(Psalm 139:13-14)

A Moment In My Mind

I was asking myself "what's wrong with me?" Why do I always have such awful thoughts? Then, in that moment, my brain chatter went completely quiet, like somebody pushed the mute button. What is this....silence? Total silence. At first I was shocked to find myself in a quiet mind and then I was immediately captivated by this unusual happenstance.

It was a rare, short but beautiful, moment because the internal dialogue that anxiety creates is unique to anxiety sufferers and it never ends. We are always worrying about something, anything, and everything. This is why I wanted to create a brief window into my life, giving people an idea of what its like to live with anxiety.

Then, the next moment, it was gone. All the brain chatter came rushing back.

What if I get sick? What if I die? What if they don't like me? What if I don't get accepted? What if I fail? What if I hurt someone? What if I mess up? What will they think of me? What's going to happen if I go? I'm hopeless. I spend too much time thinking about my thoughts. I could slice that persons face.

Suddenly, my brain shoots into overdrive. Whats wrong with me? Who thinks thoughts like that? Why do I have these thoughts? Maybe I'm a murderer. I should go to hell or maybe I should die. 

What if I die now that I've thought that? ok. ok. ok. We've got a problem! *Heart starts racing* I've got to get help! I need to text my mom. So, I reach into my pocket and pull out my phone. I search for my moms number but all I can see is pixels, even though I can see clearly in my mind where my moms name is, my eyes just can't focus on the task at hand. I'm still to worried that I'm going to die.

I could stab that person walking by.

WHAT?!?! Summer!! How could you ever think something so awful?! I must be the worst person on the planet! No one else would ever think something like that. 

The Dr. said lots of people have these thoughts occasionally...but that can't be true. Nobody thinks like that. I must be a psycho-murderer at heart. 

I could punch that person.

WHAT?!?! NO!! 

I NEED TO GET RID OF THESE THOUGHTS!!

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Still there...

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12...

You have now survived just 10 seconds in my brain. For anxiety sufferers this continues for hours and hours on end.

Although my mind is a crazy place at times, I find comfort knowing I don't need to battle alone. 

"Moses answered the people, "Stand firm and you will see the the deliverance the Lord will bring you today....The Lord will fight for you, you need only be still." (Exodus 14:14) 

I feel as though I fight anxiety every moment of my life but what a comfort to know that God's got it all under control, I need only be still. The people were despairing but Moses encouraged them to watch the wonderful way the Lord would rescue them. Moses had a positive attitude! When it looked as if they were trapped, Moses called upon God to intervene. WE may not be chased by an army but we may still feel trapped by anxiety. Instead of giving in to despair when all these thoughts are rushing through our mind we need to only "stand firm and see the deliverance the Lord will bring...The Lord will fight for you you need only be still."  

Break up letter

Dear OCD,

Sometimes I wonder why I was cursed with you. Day after day I stand here tormented by you. At times your anxiety grips me so hard I can barely breathe. You caused my immobilizing seizures. you're so unreliable! You always tell me to panic when I have an unsafe thought when no one else would be phased by  such a thought.

I hate that you are aware (or at least part of you is aware) that my anxiety doesn't match up with reality. Part of you tells me that my fears aren't going to happen. Part of you is rational. 

But only part.

And that's painfully cruel! You've taken over my brain and made my brain betray me. Brain, you have to know how cruel that is because even though I know I should let this fear go-you won't let me. Even as you taunt me with reality you still force me to clutch that anxiety to my chest.

You make me go to war with myself, making me ruminate until I'm physically and mentally exhausted. You make my thoughts bounce back and forth like  pinball machine. You send out 600 "what ifs" per hour. The only way I can let go of these thoughts is through sheer exhaustion.

Sometimes I hate you, brain, and because you are a part of me...sometimes I hate me BUT I don't have to take this anymore. Now I'm standing up to you! I'm not going to let you control my life anymore. Until now our relationship has been built on fear and that's just not healthy. Relationships need trust and I just can't trust you. So, I guess this is it...I'm breaking up with you. I don't want you to be part of my life anymore. I'm taking the necessary steps to get rid of you for good. Good bye OCD...I'm moving on from you.

            Sincerely,

        Summer

No Mistake

Sometimes our walk with God is not so much a "walk" but rather a weak, tired, crawl; sometimes its a climb up mountains of trials. This year has been packed full of trial after trial. Every single day has been a struggle. Some days I see no point in existing. This is when God grabs a hold of my heart and gives me purpose, reminding me why I'm here. Then I continue trying to live for Him. I try but so often I get distracted by c o m p a r i s o n.  I start comparing my life to the lives my friends have: going to school, going out, making new friends, having fun, working. 

Twenty-year-olds should be either working or going to school...certainly not spending two years in a psychiatric hospital. How am I supposed to be setting an example for younger kids when I can't even stay home alone and how am I supposed to shine a light for Jesus when my life is in shambles and I'm surrounded by darkness? I even question God: "How am I supposed to continue living for you when for three years I haven't felt you moving?"

What do you do when your whole world continues to fall apart? You either hold on to your brokenness and let it consume you or you turn back to Jesus and let Him calm your storm.

I guess I forget that God can use us wherever we are because He placed us here. Somehow God is going to use me right here in Parkwood hospital, even when it feels like the only thing I've done all year a survived. The ALMIGHTY God did not make any mistakes when He planned our lives. We are the right person, in the right place, at the right time. God designed us and our lives perfectly for the race laid out for us. God has fully equipped us for this life and His mercy is far greater than any mistake we could ever make. The same God who holds the stars in place is holding my life in place. He can use a broken life if only we have faith. Faith in God includes faith in His timing. I may not be doing what other twenty-year-olds are doing but I will get there eventually.

Sometimes our walk with God is not so much a "walk" but rather a weak, tired, crawl, sometimes it's a climb up mountains of trials...BUT it doesn't matter if we're walking, crawling, or climbing, God is right beside us faithfully leading us through.
 

It's Okay

These days people seem to make a big deal of telling people to "hold on" or "be strong"...but you know what...? 

It's okay to not always be strong. 

It's okay to break down and it's okay to cry. 

Some days are just hard and we need to accept them as they are. Some days all I can do is cry out to God to come save me from this mess of a mind I carry on my shoulders. Some days my heart is in such a shamble that I wonder how I managed to get dressed in the morning never mind                                                                               survive the day...but you know what...? 

                                             That's okay too. 

Some days are just hard and that's okay. 

Having a bad day and breaking down doesn't mean you're going to have a bad day everyday. 

It simply means that you had a bad day. 

Crying on a hard day doesn't make you weak, it simply makes you human. 

It's okay to not always be okay and it's okay to not always be strong. 

Fight when you can but relax when you need to. It's okay to be scared and overwhelmed just don't let it consume you. 

Let it be okay to not be okay and okay to not always be strong. When we are so weak we feel like quitting we must allow God to continue to carry us through no matter how badly you want to give up. Gods power is made perfect when we are not enough.

“My grace is all you need. My power works best in weakness.” So now I am glad to boast about my weaknesses, so that the power of Christ can work through me.

  ~2 Corinthians 12:9New Living Translation (NLT)

Personal Update-January 2015

Over the past year and a half I have been battling severe depression (which leads to suicidal thinking)-along with psychosis (Which is mainly controlled with medication now) and severe OCD. In that time my depression has been in a downward spiral. Even with each medication we tried I've just been feeling worse and worse. Medications were making me feel hopeless. I felt as if every few months my dr would say, "Here's another medication to try. It may work but probably not so welcome to your life for the next two months while we wait to see if this works" (OK, maybe they didn't quite say it like that...) Then every few months I would report "No change" (in fact, I was feeling worse). I've been stuck in a hopeless downward spiral of depression. All I ever feel like doing is sleeping but the OCD makes me need to try and distract myself  from my thoughts. No matter how hard I've tried to make myself feel happy I'm just not. Happiness feels so distant; out of reach.

Because nothing is helping my depression we are trying electroconvulsive therapy (ECT). Every Monday, Wednesday, and Friday they put me to sleep and then shock my brain into a controlled seizure. The weird thing about ECT is that no one knows exactly how/why it works. All they know is that it "resets" the chemicals in the brain. 

I started ECT on Wednesday (Jan. 21st) and I'll have up to 20 treatments. There is a lot of hope that ECT will work for me. I've seen a few other people have really great results from ECT and I'm hoping to see the same for me. So far I've only had two treatments so it is too early to see a change but the treatments have gone really well-my body is responding well to the treatments.

After the ECT is finished we will still be going to Toronto to get assessed and get some treatment for the OCD.

In the Bible, Canaan was a land with giants. The Anakites may have been 7-9' tall. Many of the walls around the city were up to 30' tall! The Israelites fear was understandable but not justified because the All Powerful God had already promised them victory. Sometimes I find myself fearful of the war raging inside my heart. The battle of good & evil; joy & sadness. I focus on the negatives and doubt God will actually pull through and help me find victory. 

"Where can we go? Our brothers made us lose heart. They say the people are stronger and taller than we are with walls up to the sky. We even saw Anakites there.Then I said to you 'Don't be shocked or afraid of them! The Lord your God is going ahead of you. He will fight for you just as you saw him do in Egypt and you saw how The Lord your God cared for you all along the way as you travelled through the wilderness, just as a father cares for his child. Now he has brought you to this place."  Deuteronomy 1:29-33

Although the road God wants us to take is sometimes scarier and harder, God has promised to lead the way and take care of us just as He has brought us this far in our journey.

Please pray that I will trust God when he says He will win the victory in my battle. Please pray that the ECT works and for as few side effects as possible.